Ryan’s update – September 2015

August was ice bucket month. In 2015 this initiative raised over $24 million in the USA which is amazing. Endorsed by lots of celebrities and sports personalities, this movement has created unbelievable awareness for ALS.

In the first week of  September, there are 3 movies about  ALS and its effects on DSTV Box Office. Joost van der Westhuizen’s biography GLORY GAMES, Stephen Hawking’s story THE THEORY OF EVERYTHING (which won an academy award) as well as YOU’RE NOT YOU staring Hillary Swank.

As of today more than $140 million has been raised by the Ice Bucket initiative. It is our dream that this money will fast track the cure. It’s important to know where this massive amount of money goes. We are constantly in contact with most of the stake holders in the USA. This is how the Ice Bucket Millions have been allocated:


Screen Shot 2015-09-11 at 1.30.39 PM


I am starting a new trial drug at the beginning of October which we are incredibly excited about.  It has required a huge financial and emotional investment, which would not have been possible were it not for the support and love of my family and special friends.

Well done to Stefan Swart who tackled the 14km stretch of beach from Umhlanga to Tsogo Sun’s Sun Coast Casino beach in the 2nd edition of “The Sandy Walk.”
This Grade 4 pupil from DPHS is Justin Swart’s son. Stefan came up with the idea on his own and managed to raise R13k for The Ryan Walker Foundation. What a legend!


Screen Shot 2015-09-11 at 1.35.49 PM


A huge thank you to Richard Khone and the Crawford College La Lucia team for organising an awesome 3rd Rugby 7’s festival.  We were privileged to be invited to the dinner where the band Rubber Duc entertained us with great music and dancing. We had a lot of fun and everyone’s efforts raised an incredible R40 000!

Thank you to John Allan, the SA Rugby Legends, the Sharks and Piet Dixon for taking the time to join us.


Screen Shot 2015-09-11 at 1.36.49 PM


An old varsity mate Rob Fleming has organized over 20 riders to ride in this year’s 94.7 Cycle Challenge to create awareness and raise funds for the foundation.
Good luck to all the boys and girls riding and we hope to see you all there.




Well done to Caeleigh O’Neill who completed the HBF City 2 Surf 12 km run in Perth and raised over a $1000. Caeleigh is married to Shane O’Neill who played rugby with me both in Ireland and in South Africa. We are so looking forward to seeing all these old friends at the end of the month in Dublin.

Lets hope the rain starts pouring down as we start preparing to plant our annual crops.

Thank you for your continued support.

Ryan Walker